“India has taken several steps to address the issue of rare diseases, but challenges remain”. Analyze the measures taken by India and assess their effectiveness.
Kartavya Desk Staff
Topic: Issues relating to development and management of Social Sector/Services relating to Health.
Topic: Issues relating to development and management of Social Sector/Services relating to Health.
Q4. “India has taken several steps to address the issue of rare diseases, but challenges remain”. Analyze the measures taken by India and assess their effectiveness. (10 M)
Difficulty Level: Medium
Reference: IE
Why the question Delhi HC directs Centre to set up Rs 974 crore rare disease fund. Key Demand of the Question To analyze the steps taken by the Indian government. Assess how effective these measures have been and highlight ongoing challenges. Structure of the Answer: Introduction Briefly introduce the significance of addressing rare diseases in India and the government’s commitment to tackling them through various policies. Body Analyze measures: Discuss key steps like the National Policy for Rare Diseases, the establishment of the National Fund for Rare Diseases, Centres of Excellence (CoEs), and fast-tracking drug approvals. Assess effectiveness: Evaluate the success of these measures, mentioning challenges like high treatment costs, underutilization of funds, and lack of awareness or infrastructure. Conclusion Conclude by acknowledging the progress made, while emphasizing the need for continued reforms, increased funding, and better access to treatment to address the gaps
Why the question
Delhi HC directs Centre to set up Rs 974 crore rare disease fund.
Key Demand of the Question
To analyze the steps taken by the Indian government. Assess how effective these measures have been and highlight ongoing challenges.
Structure of the Answer:
Introduction
Briefly introduce the significance of addressing rare diseases in India and the government’s commitment to tackling them through various policies.
• Analyze measures: Discuss key steps like the National Policy for Rare Diseases, the establishment of the National Fund for Rare Diseases, Centres of Excellence (CoEs), and fast-tracking drug approvals.
• Assess effectiveness: Evaluate the success of these measures, mentioning challenges like high treatment costs, underutilization of funds, and lack of awareness or infrastructure.
Conclusion
Conclude by acknowledging the progress made, while emphasizing the need for continued reforms, increased funding, and better access to treatment to address the gaps